Tuesday, October 28, 2008

The Results...

The *big* appointment was today.

He was a very nice man, and Jeff and I were both impressed. Julianne, of course, was a social butterfly who charmed the pants off of him!

After a long, and extensive battery of testing and questions, we were given his opinion.

He feels she has a cognitive deficit, and probably a low IQ.

As sad as this makes me, I agree, probably.

He said the words mental retardation....that she wasn't as bad as that...blah blah blah....but that she probably will never be at the same level as her peers. Her curve of learning will always be below theirs.

Always.

He wants her to try stopping the ADHD medicine, and see how she does.

We are in for a long haul of work trying to get her what she needs.

Poor baby. She doesn't deserve this kind of hard road to walk.

Monday, October 27, 2008

If You Could Read My Mind...




Tomorrow Julianne has a doctors appointment. Not just any regular doctors appointment. This is the appointment we have been on a waiting list to get to for months. It is with another neurologist. A neurologist, that I am told, is "thorough" and specializes in developmental delays and such. I must tell you, however, that I googled this doctor, and he appears to be very old. THAT worries me. I fear he will be "old school" and not up to date on the new and improved way of medicine. He is expensive too. I am pretty sure my insurance will cover the visit, but if not, oh well, what's one more bill.

People ask why I want her to see another (a second) neurologist. I tell them that I was not impressed with the first one. I feel that he mostly listened to me talk, then did a few reflex checks and listened to Julianne's heart....and then said she had ADHD. That was it.

He did not know my child. He did not ask the questions I wanted him to ask. I do not feel that she is ADHD. *I* feel that her attention disorder is a SYMPTOM of something else. ....and I want to know what that something else is.



So, I was thinking about this today. I suppose I am worried about this appointment tomorrow. I didn't think I was, but I felt funky all day, and just thinking about what the doctor might do or say tomorrow scares me. And what I am hoping for, is a terrible thing really. I am hoping he tells me that he found something on her EEG. Something in her brain is off.....BUT...but but but...this can be fixed. I am praying he finds the "problem" and then tells me how to fix it.

But the reality is far less hopeful. I feel deep sorrow that he is going to tell me something else. I fear he will tell me that her brain is perfectly normal, and that she has a learning disability of unknown origin. ... and that other than trying to help her out, there really is nothing to be done.

This scares me. As a mother....to think about your child having to struggle from here on out to do everything. Struggle to try to make sense of letters and numbers. Try to make your way through school when you can't remember anything from day to day. Struggle to get a job as an adult, because education was so hard, what kind of job will she be able to do? Her personal relationships will be strained...people will not understand, and I fear she will be alone, without friends. How will she help her own children with homework? and so on, and so on and so on.



But, then I remember that this is Julianne we are talking about. The child whom everybody loves. The little girl who is so sweet and funny and dripping with cuteness. She can charm the skin off a snake. My sweet girl who just goes on and on, and who lives every day as it comes. If anybody has a chance to overcome this disability, it is her. People love her. And I think that because she is so lovable, she gets that little extra help from those who help her.....because they love her too.




How could you NOT love this....


video

Sunday, October 26, 2008

Things I'd like to do....

Here are some things that I would like to do, or at least try.



*Take a photography class.

*Take a class on making jewelry. Bracelets and things....

*Take a sign language class.

*Rejoin the YMCA.

*I'd love to go to a taping of a Rachel Ray show.

*I'd love to have Dr. Phil as my personal therapist.

*I'd love to see the process of Goodwill...like people take their stuff there...then what? How does the stuff get to the being sold part....

*I would love to see the "behind the scenes" action at a casino.

*I would like to try skiing.

*I would like a date night with my husband. Dinner, movie, whatever.

*more to follow......

Sunday, October 19, 2008

Chicken n' Dumplin Day!

That is what today is!!!

CHICKEN N' DUMPLIN DAY at Grandma's house!!!

We.....the kids and myself...are soooooooooooo excited.

We just LOVE LOVE LOVE it when it is

CHICKEN N' DUMPLIN Day at Grandma's house!!



Thanks, Mom!!!!

Friday, October 17, 2008

Hair Lotion...

Ha ha! That is what Julianne was calling the pasty glue substance they were putting in her hair today for her "big brain test". The EEG. But Julianne and I referred to it as "The Big Brain Test". She did Sooooooooooooo good. Well, she wouldn't close her eyes for anything, but she sat still for the lady to put in all 24 electrodes full of "hair lotion", as Julianne called it. And she laid still for about an hour and a half....with just minimal wiggling. Now, we wait to find out if it shows anything. Here are some pictures.





Before leaving home:


Before getting started:


Just about to begin...


Thank God! I get to sit up now!

Thursday, October 16, 2008

I don't know.

I don't really know what to talk about here. I felt the need to post some sort of entry, to entertain the millions of followers to my blog. (yeah, sure)....

I have no idea what to post. I have no inspirational things to add. No cute new pictures of the kids. No "must tell" things.

So, let me ramble, and see what I come up with.

Allison and Alena got their hair cut. Both cute little bobs.

The kids all have some nasty diarrhea bug. Fun times.

My house is currently messy.

I'm feeling stressed and anxious about a lot of things.

I wish we could take a family trip to a pumpkin patch, but Jeff and I are never off at the same time.

I need to get Alena's Brownie sash. I mean, she has been a girl scout since Kindergarten. I think it is about time I own up to the uniform part of it.

I need to sew the patches on Allison Junior Girl Scout vest. I mean, she has been a girl scout since Kindergarten. I think it is about time I own up to the uniform part of it.

I went to my first PTA meeting, also known as "The Parent Association" the other night. It felt good to go. I think Jeff and I will take turns going. I think it is important that we be seen as interested parties to our school.

Now.....right this second...my 2 year old is fighting me to get on my lap, and to get to my soda so she can drink it.

I don't know. :)

Sunday, October 12, 2008

The Daytimer.The Dog.The Music.

I'm proud to say, that I have kept up my daytimer! If you recall, I talked about getting a calander to put all my appointments and such on...and then lost it. Then I bought another one...

Well, I took a snapshot to prove I'm doing good!!! It has been a real lifesaver also. Yay me!!

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Also, that darn dog of mine. He is thisclose to getting a shock collar around his neck. It's a good thing I'm such a sweet wonderful person, or else he'd be living with a bunch of other yiping freaks looking for good homes. :)

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And in closing today, I would like to say that I am appalled and disgusted at our local radio station 101.1. Up until this weekend, they were playing music that I, and my girls, enjoyed. This station would be on in my car, in my daughters room at night and while at work. But now....to my perturbed dismay.....they are a 24 hour Christmas music station.

It's October 12th or something, you stupid heads!!!

Tuesday, October 7, 2008

My New Favorite Drink...

If there is ONE thing you would know about me, if you knew me, it would be that I am addicted to Diet Pepsi. I am NEVER without one. It is a curse. And I drink a lot of it. And people are always astonished at how much I drink of it. But...what can I say. I've been drinking it religiously since I was about 16. It is my drink of choice, and it is what I crave when I am thirsty.




But, I've discovered another drink that I actually like! It is this:


It is Diet Pepsi with Lemon!! Looooooooooove it!!! But, I just found out it is only a "temporary" flavor. Sigh.

:)



Saturday, October 4, 2008

The Pet Blessing...

Yesterday it was the "Pet Blessing" at the kids school...in honor of St. Francis of Assisi. It was a half day of school with dismissal at 12:30. But at 12:15, they had the "pet blessing" in the parking lot. This is the first year we actually had a pet to get blessed. The kids were excited. Alena was most excited that we got to do this....but unfortunately, her teacher didn't let anybody in her class go stand by her parents, and pets....and I felt very sad about that.

Well, Chili, our dog....is crazy. He honestly, is nuts, and I should have researched his breed a little bit more before getting him. I guess I skipped over the chapter that said they barked every second while outside and that they would dig holes to china, and that they loved to kill birds or anything they can catch and them bring them into your kitchen. Oh gosh.....I can't even tell you the story of the latest dead thing....it is so gross.

Anyway...........Father Mike said something like, "If everybody could be quiet for a few seconds while I say the prayer"....and then guess what? Chili goes ballistic and barks in a crazy manner....and all I could do was just smile, and think to myself, "I hate this freaking dog."

Here are some pictures from the "pet blessing". Notice how Mason and Audrey were not respecting the "cones".









Thursday, October 2, 2008

Allison....

Just a pretty picture I took while I was tucking her in the other night. She's such a pretty girl.